Keeping a Positive Pace
6 Steps to Stay Positive about Life with a Rare, Chronic Disease
Hi guys. It’s Grant again. So, if you’re familiar with my writing, then you know that I am a very positive and happy individual. In this article, I will provide for you my own personal step-by-step guide for sustaining this state of mind while living with a chronic disease.
Now, for those of you who have never heard of pulmonary arterial hypertension (PAH), I will give a brief description.
The short definition of PAH is high blood pressure in the lungs. It is one of the least known about, rarest chronic diseases on the planet. It is a very serious disease that without proper treatment from a specialist can lead to a life expectancy as short as a year or two after diagnosis.
I didn’t know anything about this disease until around six months ago when I was diagnosed with it. I have taken the time and made the effort to educate myself and others about PAH to bring as much awareness as possible to it, and will continue to do so.
Exactly how rare is this disease? I’m glad you asked. Currently there are about 333 million people in the United States. Of those 333 million, less then 50,000 people have been diagnosed with PAH, the majority of whom are young to middle-aged women.
There are of course children and men included in that statistic as well. To date, there is no known cause of this disease (only theories about contributing factors) nor is there a cure.
The odds of a person having PAH are about as good as your odds of winning the lottery. So, I guess that makes me one of the lucky few.
There are millions of people across the globe living with chronic diseases. There are as many different ways that a person can deal with the reality of having a chronic disease.
Listed below are a few steps that help me personally on a daily basis to stay perpetually positive about life. My hope is for somebody to use these steps to help find a way to make their own life a little more comfortable and come up with a set of steps that works for them as we are all different.
6 Steps to Finding Your Happy Place
How I Keep My Positive Pace
Step 1: Keep busy
I am a journeyman carpenter with 30-ish years in the trades and the former owner of a handyman business. Having PAH has made the possibility of me continuing in that line of work an impossibility. To find a new career, I am currently enrolled as a full-time student in college to earn a degree in business as well as biotechnology. I am writing a novel. I have a YouTube channel. I am always writing or doing something to benefit myself and others. I write and record music and poetry as well.
Step 2: Never slow down or think that you have to
Keep your mind out of the grave by whatever means necessary. If you find yourself feeling discouraged by physical limitations then find an activity that you can do and do a lot of it without hurting yourself. Keeping your body as active as you can will also help keep your mind active.
Step 3: Learn to do something new
Learning to do (or learning about) new stuff is not only cool but stimulating and exciting.
Step 4: Don’t stress
For the love of God, don’t stress out about things that you have no control over. Stressing out too much can lead to depression and being depressed is not healthy.
Step 5: Eat healthy food
Eating healthy is a big part of keeping a positive mindset which is also helpful in keeping a positive pace.
Step 6: Never give up
If you never give up hope, or never give up trying to be the best you can be or achieving your goals, then you will never fail and you will never be defeated. No matter what happens.
Keeping it Real
So, in this article I talked a little bit about some things I do to keep a positive pace. I view having a rare chronic disease as a challenge, not a permanent obstacle. An opportunity to help others who may be going through a similar situation. A chance to strengthen the mind.
Advances in medicine as well as therapy are being made every day. The power of the mind (I believe) is the most powerful tool we have. It’s important to keep it sharp.
Of course I realize that these 6 steps don’t hold any ground-breaking wisdom or deep insight but they are good food for thought if nothing else. Even if only a couple people find something useful in anything that I write then that makes me feel good.
Happiness is good medicine.
You may also enjoy reading:





