avatarSandi Parsons

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With the dawn came my morning cough, and that sparked another round of bleeding — another 300ml.</p><p id="550c">Once Jarryn was awake, I got him ready for school. As I did, I was discreetly spitting blood into a plastic cup which I once again filled. I drove Jarryn to school before driving myself to hospital. I was hoping to talk my way into doing antibiotics at home, but my medical staff wouldn’t budge.</p><p id="05b5">It was the first time since Jarryn had been born that I was admitted to hospital.</p><h1 id="b44f">Snap, crackle, and pop</h1><p id="a5d1">For the next three years, I was a random bleeder. There is a particular sensation, hard to describe, but a hybrid feeling that manages to both push and pull at the same time. After that, you can both feel and hear the crackle of blood pooling in your lungs. So I call it, ‘snap, crackle and pop’, It would strike without warning, seemingly when I was feeling fine, however, an infection had been bubbling away in the background.</p><p id="82ef">Three years after my bleeds started, they stopped.</p><h1 id="79ef">31 Days of Cystic Fibrosis Bonus Fact</h1><p id="8b95">As I was collecting Jarryn from my Gran’s after school, I went snap, crackle, and pop, and blood filled my mouth. I never liked to worry my Gran, so I was trying to hustle Jarryn out the door before she could notice.</p><p id="d0c0">Jarryn wasn’t displaying any signs of moving in a hurry

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. So, as I am a delightful mother, I turned my back on Gran and gave Jarryn the full Gene Simmons — bloody mouth complete with waggling tongue. He moved pretty quickly after that, and my Gran was none the wiser!</p><p id="7a86"><i>31 Days of Cystic Fibrosis is an awareness-raising campaign to coincide with the national Cystic Fibrosis (CF) awareness month in Australia.</i></p><h2 id="4fbc">Next in the 31 Days of Cystic Fibrosis series — The Reasonably Good Health I Had Enjoyed Up to This Point Would Not Continue Forever</h2><p id="e762"><i>Traveling with CF. Once I started traveling, I didn’t want to stop.</i></p><p id="479d">If you’ve just joined the journey and want to start at the beginning, you’ll find the first post here:</p><div id="16aa" class="link-block"> <a href="https://readmedium.com/your-daughter-has-cystic-fibrosis-i-was-a-new-mum-dealing-with-a-seriously-ill-child-e09d2bd7d628"> <div> <div> <h2>Your Daughter Has Cystic Fibrosis. I Was a New Mum Dealing With a Seriously Ill Child</h2> <div><h3>Day 1. A Mother’s story</h3></div> <div><p>medium.com</p></div> </div> <div> <div style="background-image: url(https://miro.readmedium.com/v2/resize:fit:320/0*UHleT67jZgkzCcy9)"></div> </div> </div> </a> </div></article></body>

31 DAYS OF CYSTIC FIBROSIS

Hemoptysis: A Fancy Word for a Lung Bleed

Day 17: I coughed up a liter of blood and drove myself to hospital

Joe Bielawa from Wikimedia Commons

Years ago, I had watched my best friend Julie cough mouthfuls of blood and casually spit into the sink as if it was no big deal. So when I first saw bloody streaks in my sputum, I wasn’t overly concerned. At times there were more than streaks, and sometimes those episodes lingered longer than I would have liked.

One night I went to bed feeling fine. I woke from a deep sleep in a coughing fit. In my dream, someone was spraying the back of my throat with a water pistol (everyone else has strange dreams too, right?). Eventually, I woke up enough to realise that there was no water pistol and that I was experiencing a massive bleed.

I returned to bed, where my son lay sleeping, and coughed up around 400mls of blood. When I eventually stopped, I looked a mess. There was blood over the sheets and through my hair. I cleaned up, then sat upright in bed until dawn. With the dawn came my morning cough, and that sparked another round of bleeding — another 300ml.

Once Jarryn was awake, I got him ready for school. As I did, I was discreetly spitting blood into a plastic cup which I once again filled. I drove Jarryn to school before driving myself to hospital. I was hoping to talk my way into doing antibiotics at home, but my medical staff wouldn’t budge.

It was the first time since Jarryn had been born that I was admitted to hospital.

Snap, crackle, and pop

For the next three years, I was a random bleeder. There is a particular sensation, hard to describe, but a hybrid feeling that manages to both push and pull at the same time. After that, you can both feel and hear the crackle of blood pooling in your lungs. So I call it, ‘snap, crackle and pop’, It would strike without warning, seemingly when I was feeling fine, however, an infection had been bubbling away in the background.

Three years after my bleeds started, they stopped.

31 Days of Cystic Fibrosis Bonus Fact

As I was collecting Jarryn from my Gran’s after school, I went snap, crackle, and pop, and blood filled my mouth. I never liked to worry my Gran, so I was trying to hustle Jarryn out the door before she could notice.

Jarryn wasn’t displaying any signs of moving in a hurry. So, as I am a delightful mother, I turned my back on Gran and gave Jarryn the full Gene Simmons — bloody mouth complete with waggling tongue. He moved pretty quickly after that, and my Gran was none the wiser!

31 Days of Cystic Fibrosis is an awareness-raising campaign to coincide with the national Cystic Fibrosis (CF) awareness month in Australia.

Next in the 31 Days of Cystic Fibrosis series — The Reasonably Good Health I Had Enjoyed Up to This Point Would Not Continue Forever

Traveling with CF. Once I started traveling, I didn’t want to stop.

If you’ve just joined the journey and want to start at the beginning, you’ll find the first post here:

Cystic Fibrosis
31 Daysof Cystic Fibrosis
Bleeding
Coughing
Hospital
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