avatarAlan Miles

Summary

The narrative recounts the author's experiences with their partner Lena, who has Alzheimer's, particularly focusing on her changing sense of fashion and the social challenges they face due to her condition.

Abstract

Since Lena's Alzheimer's diagnosis, the author has observed a decline in her ability to dress appropriately, leading to minor conflicts and humorous situations. Initially, the author tried to correct Lena's clothing choices, but eventually learned to respect her autonomy and preferences. As Lena's condition progressed, she began to rely on the author for dressing, and while she struggles with decision-making, her appreciation for style remains through tactile exploration. An incident in a supermarket highlights the delicate balance between respecting Lena's independence and managing socially inappropriate behavior. The author reflects on the loss of shared experiences and the need to set boundaries while preserving Lena's dignity.

Opinions

  • The author initially struggled with Lena's unconventional clothing choices but learned to prioritize her autonomy over societal norms.
  • Lena's non-verbal expressions of style appreciation are seen as a positive aspect of her condition, as they represent a flicker of her former self.
  • The author expresses a mix of amusement and embarrassment in response to Lena's candid reactions to others' fashion faux pas.
  • There is a sense of pride and protectiveness in the way the author describes managing Lena's public behavior, emphasizing the importance of dignity and respect.
  • The author acknowledges the changes in their relationship due to Alzheimer's, including the loss of shared jokes and the necessity of establishing new boundaries.

One Place Never To Draw The Line

Has my partner joined the fashion police?

Read the back(side)-story. Photo © Can Stock Photo / edan

From the early days after her Alzheimers diagnosis, Lena’s clothes-sense became … random. On a blazing-hot day, she’d choose her warmest winter jacket to go out. Or we’d be halfway down the road when I’d suddenly notice she’d forgotten to put one of her shoes on. And while I’m no expert when it comes to colour-matching, my kids agreed that Lena’s choices were becoming ‘original’.

At first we had little battles about it.

– You can’t possibly wear that.

– Yes I can. I want to wear it.

– But you’ll be boiling in it.

– No I won’t. I want this one. It’s my choice. I’m not a baby!

True, she wasn’t, and I gradually got better at respecting her wishes. It wasn’t worth fighting about. And what did it really matter if we got a few funny looks from T-shirt-clad passers-by when Lena was wearing two overcoats, one of them inside out. They probably thought she was religious.

It got easier when Lena forgot where the clothes were kept. Even when she found them, she couldn’t quite figure out where her various arms and legs were supposed to go. So nowadays, she leaves the dressing up to me.

I try to offer her choices.

– Look this one’s nice. Do you want to wear this one today? Or what about this one? Look, you haven’t worn it for a while.

But alternatives are hard for her.

– This one? … or this one?

– This one. Den här.

She’s pointing at my nose.

And yet Lena hasn’t quite lost her sense of style. She knows what she likes, but now that words can’t properly do the job for her, she shows her appreciation in other ways. Touchy-feely ways often.

If you’re wearing a pretty necklace or an unusual ring, she notices it immediately and reaches out to touch it, eyes sparkling with interest. Perhaps you’re talking to me, but Lena’s concentration is unwavering. Her hand reaches toward you again.

If a child behaved like this, I’d have a sharp word with them. This isn’t the way we humans behave. Repress that curiosity.

But this is Lena, and Alzheimers has repressed so many of her emotions and instincts. When I see them flickering back into life, I desperately want to fan the flame.

– Oh yes, look at that. It’s lovely, isn’t it?

I hope you won’t be embarrassed.

But Lena spots other people’s bad style choices too, and sometimes that can give rise to … a situation.

We’re in the supermarket at my favourite area, the little section with today’s discounts. It’s always busy, with people looking for bargain buns and sandwiches for lunch. You never know what nice surprises you’ll find.

A little round guy shoves his way in front of me, and bends down to scan the cheeses and cold cuts on the bottom shelf, completely blocking my access. All we can really see now is what’s known in the trade as a builder’s bum¹. Not what we were looking for. Unappetising.

I glance at Lena and see the distaste on her face, her hand reaching out to him. I know what’s going to happen and hiss:

– Lena. No!

Too late.

Her finger lands neatly in the crease that’s gaping at us.

The man shoots bolt upright, nearly catching Lena’s chin with the top of his head. I take a step back, pretending I have nothing to do with this shameless woman. He glares at her accusingly.

But he’s no match for Lena. She draws herself up to her full height, and fixes him with a look of steady withering disdain. No words are necessary. His eyes surrender and he shuffles away.

What is she feeling? Is that a little sign of triumph, that faint smile as she turns back to me? Did she notice my cowardice? In the old days, when we shared all our little secrets, we’d have talked about it and laughed. Those days have passed.

I take her hand and pull her close to keep her in check. I don’t want to take away her freedom, but there are limits. We have to draw the line somewhere — and it shouldn’t be along a stranger’s intergluteal cleft.

Notes

¹ plumber’s crack, for readers of the American persuasion. (Don’t tell me I don’t give you culture!)

This is one of a series of stories about our adventures since Lena’s diagnosis in 2013. If you enjoyed this one, you might like to try these, the first from the early days, the second very recent:

Dementia
Relationships
Behaviour
Short Story
Humor
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