avatarEmily Buenting

Summary

The author shares their personal journey with low vision, detailing the challenges and adaptations made from childhood to adulthood.

Abstract

The narrative "My Low-Vision Life" recounts the author's experience with legal blindness from infancy, highlighting the initial concerns of their parents, the improvement of their vision until their twenties, and the subsequent age-related degeneration. The author, who was among the first to integrate into a regular school system in Pittsburgh, describes the support received from a teacher for the visually impaired, who provided practical skills like typing and street crossing. Despite declining special services in higher education, the author faces ongoing challenges such as lack of depth perception and difficulty recognizing faces, which often leads to misunderstandings about their sociability. The author also discusses the benefits of technology, like using an iPhone to read menus, and the disappointment of not being able to enjoy 3-D movies. They express gratitude for their Kindle's virtual large-print library and identify with renowned writers who shared their condition.

Opinions

  • The author values the independence and opportunities that arose from being integrated into a regular school system at a young age.
  • They hold a pragmatic view on the limitations of their vision, finding humor in situations like the impracticality of a "Large Print Pocket Dictionary."
  • The author appreciates the financial savings from not driving and the ability to navigate menus using modern technology.
  • They express frustration with the repeated and unnecessary testing of their blind right eye by ophthalmologists.
  • The author takes solace and inspiration from the company of other successful blind or visually impaired writers, such as Alice Walker and Audrey Lorde.

My Low-Vision Life

Things you’d never know by looking at me.

Thanks to David Travis on UnSplash.

Three months after I was born my young parents became worried. I was a happy baby when they were nearby, but when they moved a couple of feet away I would cry relentlessly.

They took me to the doctor. He assessed me and reported the devastating news: I was legally blind. In those days that meant I’d likely have to be institutionalized.

Thankfully as I grew, so did the deformed optic nerve in my left eye. My vision improved up until I was 20. Now on the flip-side of 40 my eye is experiencing the natural degeneration that comes with aging.

I was one of the first kids who had a disability to attend a “regular” elementary school in Pittsburg. In first grade they took me out of class to go swimming and have lunch in the teacher’s cafeteria at the high school. I’m still not sure how this related to my visual impairment, but it was fun.

In 3rd grade we moved to Connecticut and I was assigned a teacher for the visually impaired. She was much more useful. She took me out and tutored me on crossing streets. She also taught me to type.

She wasn’t perfect, despite her big heart. For example, I wasn’t a big fan of the “Large Print Pocket Dictionary” which was bigger than my head. My peers got a laugh out of that. I met with her an hour a week through high school.

I declined any special services in college and beyond since I didn’t feel I needed them.

Most people are surprised when I tell them I’m visually impaired and blind in my right eye. Besides wearing glasses there’s really nothing blatant to tip a person off.

Of course, there are some challenges with having bad eyesight.

I’m a klutz. My lack of depth perception and peripheral vision means that I trip and fall a lot. What’s a bruised knee here and there? (I probably won’t have that attitude when I’m 80 and falling means broken hips.)

I also can’t drive. I rely on public transportation or the kindness of friends. The benefit? I’ve saved thousands upon thousands of dollars on car payments, insurance, gas and mechanics.

Wall menus used to be a real bitch. Now I can just snap a photo with my iPhone and zoom in. It's nice to be able to have a selection rather than being relegated to obvious menu choices dependent on the type of restaurant I’m in.

Its hard for me to see a person’s facial features or expressions from any distance. I’m not a snob, I’m actually very friendly person close-up!

3-D movies are the worst. My one working eye sees blurry, super-imposed images on the screen. Recipe for a headache.

I miss my library of paper books. I’ve always been a voracious reader. I’m grateful for my virtual large-print library on my Kindle.

Every single ophthalmologist I’ve gone to still feels the need to test whether I have vision in my right eye.

“Cover your left eye, now what do you see?” Nothing!

I’ve discovered along the way that the majority of people assume that blind people see black. Black is actually a color. Trying to see out of my right eye is like trying to see out of a cheek — just nothing to see.

When I discovered that novelist Alice Walker and poet Audrey Lorde were blind in their right eyes I was overjoyed to be in the company of such talented writers.

Visual Impairment
Legally Blind
Disability
Personal Essay
Illumination
Recommended from ReadMedium