avatarJanet Meisel

Summary

The article "Losing Yourself at Both Ends" explores the emotional and practical challenges of simultaneously caring for grandchildren with high-functioning autism and an ageing parent, while reflecting on the impact of these responsibilities on the author's identity and personal relationships.

Abstract

The author delves into the complexities of caring for grandchildren who are on the autism spectrum, describing the unique bond and the challenges it brings, including the boys' exceptional abilities and occasional behavioral issues. Alongside this, the author is also caring for a 96-year-old mother who resides in a retirement 'resort,' where caregivers assist with daily tasks, yet the emotional and logistical support largely falls on the author. The article highlights the parallel vulnerabilities of the young and the old and the energy-consuming nature of nurturing both ends of the human lifespan. Despite the demands, the author remains steadfast in love and duty, reflecting on the future with a mix of anticipation and uncertainty, hoping to one day rediscover their individual self amidst these profound familial roles.

Opinions

  • The author expresses unconditional love for their grandchildren, particularly valuing their autism, which they describe as both heartwarming and challenging.
  • The hidden nature of high-functioning autism is emphasized, with its ability to mask the challenges faced by the author's grandsons, yet it periodically reveals itself through their behaviors.
  • The author provides a nuanced view of their mother's living situation, acknowledging the pride and independence maintained in her old age, but also the reality of needing assistance.
  • The article conveys a strong sense of reciprocity in caregiving, reflecting on the life-long journey from being mothered to mothering, and the emotional and physical toll it takes on the caregiver.
  • There is a recognition of the sacrifices made by the author's spouse, who, despite understanding the depth of the author's familial love, waits patiently for attention amidst the demanding care of both young and old.
  • The author is introspective about their own identity, acknowledging the current phase of life as one of service, while looking forward to a time when they might emerge from the shadows of caregiving.

Losing Yourself at Both Ends

The dilemma of caring for grandchildren and ageing parents

Photo by Anna Kolosyuk on Unsplash

One end: Welded.

My grandsons have ruled my heart since they were born.

Two have been difficult, different, even as babies. I love their autism almost as much as I love them. It welds them into my heart, it breaks it occasionally.

And it teaches me about myself as much as it teaches me about them.

High functioning autism is a hidden disability.

It disguises itself and makes you forget, but it doesn’t go away. It just tricks you from day to day and year to year. There are times I could doubt, looking at their beautiful faces and strong, straight bodies. Or the way they excel at every sport. Or act like everyday, idiotic teenagers.

But the mask slips.

They tell me every statistic possible about every team in every game in every sport. Or melt down overwhelmed by anxieties. Or pick their kid brother up on impulse and throw him like a football. Or run out of class because they can’t sit still any longer. And so it continues.

I run through their short experience of life.

They are subject to patterns of denial and ignorance, but also of learning and evolution. Opposing forces of acceptance and discrimination, cruelty and love. I always love because I’m a grandmother. I’ve been there, since their first steps, and always will be. Welded.

Photo by Rod Long on Unsplash

The other end: Mothered.

My mother is beyond elderly.

My mother, at 96, lives alone in her own apartment in a retirement ‘resort.’ This term belies the truth of helplessness. But that’s the point. A residential setting that promises independence, except for the carers paid to keep a watchful eye. They do the things she is too proud for me to do. Like showering, dressing, laundry or cleaning. But I do everything else, or at least organise to get it done.

She mothered me, now I return the gift.

Ageing parents and growing children have the same vulnerability.

They can be sad, fragile, lonely, anxious and confused. Someone has to care enough to keep them safe and keep them sane.

Paying attention to both ends of human existence, growth and decline, takes time and patience. School runs and dementia assessments. Games in the park and quiet, hand-holding chats.

At the bottom of the priority heap, is a good man.

He understands that women love their children far more than their husbands. And that grandchildren are loved the most. But he clings on with patience, waiting for crumbs.

Meanwhile, the energy is burnt away at both ends.

It is spent on both young and old, frail and strong. On those growing up and those growing old, in perfect synchrony with each other.

I trust one day I’ll be me again, when everyone has finished their own journey.

And somewhere in this time of strange rewards, there will be a time for goodbyes, and a time for new beginnings. I only hope I’m ready when it comes.

This Happened To Me
Life
Relationships
Ageing
Illumination
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