From Diagnosis to Survivorship: My Thyroid Cancer Story
Candid Reflections on Thyroid Cancer
I had my first panic attack while delivering restaurant food for Take-out Taxi, my part-time job. As soon as I drove onto an interstate highway, my chest started squeezing, and I felt like I couldn’t breathe. It was scary, and I wondered if I was having a heart attack. But it disappeared quickly, leaving no ill effects, so I brushed it off as nothing and continued delivering food.
Next, the chest squeezing started happening at my office job at weird times for what seemed like no reason at all. Around the same time, I developed heart palpitations that took my breath away and made me cough.
I was concerned enough to go to my primary care doctor and tell her what was happening. She prescribed BuSpar for the anxiety and Atenolol for the heart palpitations. She also sent me for ultrasounds on my thyroid and heart to see if anything was up.
Testing and Surgery
The thyroid test showed a nodule, so I got sent to an endocrinologist, who did a biopsy. The biopsy came back suspicious of cancer, so I had to make an appointment with a doctor at the Cancer Center near me in Philadelphia. One thing after another was happening, and I was getting more anxious with each visit.
The doctor in Philadelphia told me he didn’t think I had cancer because I was too young for thyroid cancer at 41 years old. But he wanted to remove half of my thyroid for testing to be on the safe side.
The surgery wasn’t too bad. I woke up with a bad sore throat from the breathing tube. That had me crunching on ice all day and urinating every hour on the hour. I didn’t get any sleep because every hour, I had to go to the bathroom, or the nurses came in to check my vitals. I was miserable the next morning.
I hated spending the night in the hospital, but I figured I was lucky compared to some of the other cancer patients I was there with. Many had a much longer and harder road in fighting their cancers.
I got to go home after one night and sleep in my bed. I slept so soundly for 12 hours thanks to the little sleep I had the night before. I woke up disoriented, wondering what day it was. It was a strange feeling.
The Bad News
Then came the wait for the results. I was trying not to worry since the doctor said he didn’t think it would be cancer. I had the week off work, so I kept myself busy by walking the dog, reading, and whatnot. I was bored, though, as I wasn’t used to just sitting around waiting.
A week later, I got the bad news. I had cancer!
Thyroid cancer is said to be caused by too much radiation. How did I receive all this radiation to have cancer? I had numerous X-rays throughout my life (particularly dental), but I thought they were supposed to be safe.
A diagnosis of cancer isn’t something anyone wants to hear. Worse yet, I had to return for another surgery to remove the other half of the thyroid. Ugh! Why didn’t they take the whole thing out to begin with?
Decision Time and Another Surgery
I could either have the second surgery within the week or wait two months. Something about the healing of the wound made it impossible to go back between those two times.
I opted for waiting two months. Everyone thought I was crazy to wait since cancer was present, but the doctor assured me it was slow-moving and nothing to worry about. I’m not sure why I believed him since he had previously told me he didn’t think it was cancer, but I did.
The second surgery went better. I had no sore throat afterward, so I didn’t have to drink and pee all the time. I had a great night nurse with a calming voice who made me feel good. I didn’t mind her waking me up here and there to check my vitals.
From what the doctor said, I was cured, and there was no more worry. What a relief!
Radioactive Iodine Treatment
But afterward, I had an appointment with the endocrinologist and was told I would have to go for a radioactive iodine treatment. This involved going to the hospital to take a capsule. This treatment is supposed to kill any thyroid tissue that may remain.
Before starting the treatment, I had to quit taking my thyroid medicine for a month. They said I would be tired, so they put me on disability from work. I spent the month feeling very tired and constipated. The time off was not fun by any means. I mostly lay around watching television and playing with my dog.
After taking the capsule, I could not be within six feet of another human being for a few days as I would be radioactive. I asked about my dog, and they said I wouldn’t have to worry about him. I was worried, though, as he wouldn’t stay six feet away from me. He followed me everywhere. It would probably be bad for dogs if it’s bad for humans. A pet care lady took him for a day for his safety. After a few days, I went for a scan to make sure everything looked good, and it did. My cancer was gone!
My Happy Ending
So I thought this was the end of my thyroid cancer journey, but the doctors neglected to mention that they would keep me on a low dose of thyroid medicine that would make me hyperthyroid. This was supposed to help keep the cancer from coming back.
In the meantime, I was stuck with diarrhea, anxiety, and heart palpitations from the hyperthyroidism. These symptoms went on for years. I still have heart palpitations (sometimes all night) and occasional anxiety, and I probably will for life. Since it has been over 20 years since my diagnosis, they keep my thyroid levels in the normal range. There is less chance of it coming back.
Even though the cancer disappeared twenty years ago, I still have some reminders of it with these symptoms. I thank God every day that my primary care doctor had the foresight to send me for those tests, so it was caught early. It could have been worse.