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Summary

The article discusses how Diego, a young man with autism and intellectual disability, uses language in a unique and poetic way that reflects his personal experiences and emotions.

Abstract

Diego's language, while classified as disordered due to his autism and intellectual disability, showcases a rich and evocative quality that transcends conventional communication. Despite scoring below average on standard language assessments, his ability to remember and use information in areas of interest, such as movies and nature, is exceptional. His language is marked by imaginative vocabulary and metaphorical expressions, influenced by his fascinations. The article emphasizes that Diego's communication style, though unconventional, is a reflection of his distinctive mind and personality, and it carries a special beauty that should be appreciated and understood as a form of poetic expression.

Opinions

  • Diego's language is seen not merely as a set of deficits but as a unique aspect of his identity, shaped by his autism and intellectual disability.
  • The author believes that Diego's special needs, including his language, require accommodation and effort, but they also contribute to his unique mind.
  • Diego's use of language is considered evocative and complex, suggesting that standardized tests do not fully capture the depth and richness of his communication abilities.
  • The author finds a special beauty and poetry in Diego's way of expressing himself, which reflects his innocent and loving nature.
  • The article suggests that Diego's language reflects the unusual way he makes sense of his experiences and conveys his feelings, using vivid imagery and metaphors from his interests in movies, animals, and nature.
  • The author highlights the importance of recognizing and valuing the unique ways in which individuals with autism communicate, beyond the limitations implied by diagnostic criteria and test scores.

The Beauty in Disordered Language

How the “deficits” of autism render my son’s language poetic

Photo by Kristijan Arsov on Unsplash

Diego’s language is disordered. His grammar and vocabulary are relatively strong; understanding and application of conversational rules are atrocious.

Diego’s disordered language is largely the result of his autism and intellectual disability. When he was last tested (at age 18; he’s now 25), his standard language scores were all below average, except for the Information subtest of the WAIS-IV (Wechsler Adult Intelligence Scale).

This higher score wasn’t surprising. Diego surely has a great memory, especially for areas of supreme interest, which include movies, animals, nature, geography and birthdays.

Such “obsessions” are, after all, one of autism’s diagnostic criteria. The DSM-5 (Diagnostic and Statistical Manual of Mental Disorders) describes the criterion this way: “Highly restricted, fixated interests that are abnormal in intensity or focus (e.g, strong attachment to or preoccupation with unusual objects, excessively circumscribed or perseverative interest).”

While Diego scored average in the information subtest, his pragmatic language score in the TOPL (Test of Pragmatic Language) was particularly low (2nd percentile). This, too, is part of autism’s diagnostic criteria: “Persistent deficits in social communication and social interaction across multiple contexts.”

Deficits and scores notwithstanding, Diego’s language is evocative and complex. How can this be?

Diego’s special needs require accommodating and extra effort on his part and on ours. Diego’s deficits, however, are also part of his unique mind. Other components include his personality (animated, needy, affectionate) and heart (innocent and full of love for everyone).

Diego’s unique mind necessarily shapes his language. As a result, there is a special beauty and poetry to Diego’s language that reflect the unusual way in which he makes sense of his experience and expresses his feelings.

Here are just a few examples:

Diego loves movies, fairy tales, legends and myths. He’ll say, for example, “I’ll go to Eugenia’s [cousin’s] bedchamber,” not the bedroom. “I’ll get the cauldron for the pasta,” not a plain old pot.

When we talked about him going to a residential program, he said, “No matter where I go, you will always be my mother.” That one came straight out of Disney’s Tarzan.

When his dad asks him to do something, he’ll sometimes reply, with a mischievous look on his face, “Yes, your majesty.” He handed me an envelope the other day and said, “This is for the queen.”

Photo by lee bernd on Unsplash

Diego also uses lots of imagery associated with the animal and natural worlds he so loves. He has a simile or metaphor for everything.

A puddle on the pavement looks “like Lake Tanganyka.” Water going down the drain is akin to “a typhoon in the Philippines.”

At the Turkey Trot, he runs like “an antelope” and finds himself “running in a stampede like a wildebeest.” When we’re approaching the race start line, “The herd is moving.”

Diego can also “swim faster than a manatee.”

When Diego walks around the house, he is “patrolling like a lion.” 🦁

After a meal, he says: “I’m going to put away the remains,” not the leftovers. For breakfast, he eats “krill like a whale,” not cereal. 🐋

When he had his wisdom teeth pulled out, he looked like a “puffer fish.” 🐡

When he takes a long nap, he’s “hibernating.”

At his favorite restaurant, Diego once decided to “change to pizza like leopard seals change to penguins in the summer.” Makes total sense! As you may know, leopard seals in Antarctica usually eat other seals, but switch to penguins in the summer when penguins go back to feed in the ocean. 🐧

He asks if I love him “like a mother blue whale.” 🐋

And this utterance that seared my heart since Diego has such a hard time not interrupting: “I didn’t interrupt. I walked away like a sad dog that is homeless.” 💔

Parenting
Disability
Autism
Life Lessons
Language
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